I’m so glad you are here. Whether you are here to kick the tires of my resource page or wrestle through some heartfelt issues…welcome!
As I’ve put pen to paper here, my greatest aim is to give refuge for any who may need to know that they are not alone. I am familiar with feeling unescorted in the ocean of parenting a child with complex medical needs. So, along with camaraderie, I also aim to buoy your hope, & your child’s, with key resources & creative products.
I don’t know about you, but I often feel it would be helpful–in doling out understanding & grace to one another–if we all wore name tags that introduced us with a few disclaimers.
Like when we had our twin babes & were averaging 3 hours of sleep a night & yet I had to run into Target to pick up diapers—I would have loved my name tag to say, ‘Hello, my name is Becca, please don’t mind my outfit, I haven’t washed my hair or done laundry for at least a week. Also, I’m not normally this heavy but, gained quite a bit of extra weight while making two babes on the inside & caring for one toddler on the outside.’
When you have a child with complex medical needs, chronic illness, disabilities or special needs you often feel that life happens in plan B, C & often times, G. Disclaimers would be so helpful when facing the general public, let alone medical specialists.
Hello, My Name Is…?
What would you say? Maybe that you are an expert on your child so please listen–but, you don’t have a medical degree, masters in education or law degree when caregiving after a surgery, sitting in IEP meetings or advocating with insurance companies what is ‘medically neccessary’?
Or maybe that you are passionate about caring for your child but, don’t want to be defined by it?
My name tag would probably change from day to day but, as I’m introducing myself to you, here are a few things I want you to know-
- I first found connection in words. Reading & writing can connect us with that which may not be available in person but, can serve as a bond to another. Words were my first ‘friends’ in navigating this journey. So this blog is important to me as are the titles in the resource list. Maybe grab a journal & pen yourself.
- My faith in God’s grace is behind all of what I do here–but, I stay away from platitudes–as I find cliches very unhelpful. Grace isn’t worried about nice & tidy, which is good to remember, as life is anything but. So, although I may not be overt about my faith in every paragraph–it is my compass.
- Our stories will vary, as will our kiddos’ diagnoses, resources & challenges but, I have tried to find universal themes & global hope so that my voice can help you on your unique journey.
- Stay true to you & don’t look to the right or left. Comparison snuffs out community, hope, joy & teamwork. You matter. You are uniquely qualified. You are fit for the tasks today holds. And although our stories differ–I want to cheer you on–
So, Welcome! I’m very glad you are here. How I desire this site to be a sweet space for you–